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I have had several people talk about their children's specific difficulties on my friend's lists, they run the gambit from high sensitivities to full blown autism.
I do not have any children and cannot imagine the myriad of emotional trauma of having a child with these problems causes.
To all of those people on my list, I have remained silent not because I do not care but am at a loss as how to comfort you at all since I have no experience with children and would not be able to offer anything that would not sound arch or false.
One thing I thought I could do, however clumsy an effort is explain what it is to be a kid like that because I was one.
I had been labeled with lots of things. They did not yet know about ADD or else I am certain that would have been the first pronouncement. Some said I was autistic, emotionally disturbed, a sociopath, and one said she was 100% certain I was mentally retarded and needed to be removed from the public school system. She said this to my mother this in front of me assuming I did not have the capacity to understand what she meant.
I found out recently from one of my sisters that as an infant I had not spoken at all by the time that supposed to be happening. People were mildly concerned about it until one afternoon I rattled off an entire television commercial for "Cascade" from start to finish including the jingle.
I had to smell and touch EVERYTHING. This one is still with me although I try not to do it front of other people.
As I developed cognitive abilities I had my own world in my head because the real world brought terrors and discomforts that were hard to articulate.
I couldn't stand the newspaper, I loved blank paper because I was in control of what went on that but paper so large with a language all over it was threatening to me and I would cry in horror as my father rattled it loudly on Sunday mornings. My mothers love for thick shag carpeting caused me no end of consternation. When I stepped on it, it would curl around my feet causing me not to be able to see my toes. I interpreted this as literally disappearing and so refused to walk on it. I would get around this by begging people to carry me around the house or lining the floors with safe objects: clothes, books, paper, toys became ultra important paths of safety. Being left alone on a twin bed every night in a room with shag carpeting was tantamount to leaving me on a dinghy in the middle of the ocean.
My mother constantly washed her hands and then did not dry them all of the way. They felt cold and dead like meat and I did not want them touching me so I would run from her anytime I saw her coming from the sink.
I did not like large spaces, I was not safe there. So I spent a lot of time in boxes, cabinets and closets. I would bring flashlights with me and whatever I planned to do, read or draw or plan. A small enclosed space was the only place I could really breathe. I remember my mother discussing some news item about jailed parents who had locked their children in the closet. Her anger seemed strange to me since at the time, that seemed the safest place to keep one's children in my mind.
School was a major pain in my balls. The structure was confining and a lot of things that teachers did made no logical sense to me. I would respond in kind with things that made no sense to them. Sometimes I would perform experiments that I felt were crucial to me understanding how the world worked instead of the regular curriculum; like emptying the paper hole punch into the air conditioner to see if it would emulate snow when the box would switch on at exactly 2:15.
During a third grade recess I sat still like a stone on the edge of the black top even though it was ghastly hot and I felt like I was baking just sitting there. Eventually the group of brown finches I had my eye on hopped out of the bushes and bounced around me like I was invisible, just inches away. One hopped onto the tip of my red Keds peeping and pecking at my shoelace. The other kids had taken notice since I was entirely surrounded by birds and they all ran over causing the birds to scatter. When I refused to respond to questions about how I had managed to get the birds to come to me Chris Johnson kicked pebbles at me and called me a "witch."
My long years have now taught me that in response I should have leapt to my feet, confirmed his accusation and with pointing finger claimed I was now going to chant an incantation that would cause his pecker to fall clean off.
Thus began my long and winding road of getting transferred from one school to another.
My worst problem was noise. I was ultra sensitive to loud noises but especially white noise. It is still difficult for me to put into words how certain noise would send me scrambling for safety. I would try and explain to people as the noise made by a single object repeated many thousands of times, as if I could hear every instance of it. I would clap my hands over my ears and yell that I could hear all of the blades of grass growing at the same time or all the bees all over the world buzzing at once. This led to most adults rightfully labeling me as "creepy."
When things became too overwhelming I would simply shut down which would result in me refusing to respond to touch or verbal commands. I would sit with eyes transfixed forward concentrating on a single spot refusing to speak or move or blink until they would either ignore me move me frozen in my desk while the legs scraped loud against the linoleum. They would often push me all the way into the hallway like a piece of petrified wood.
I am now past most of the strange obstacles that I had to live with during my single digits. I admittedly have some residuals that will never leave and some newly manifested quirks. There are some things that I experienced as a child that I still cannot explain, some of them are terrifying and some are majestic and some are both.
I can still hear conversations in white noise if I pay attention. I still can't stand very high frequencies to the point of occasionally carrying around a small can of WD-40 with me in case I come across squeaky wheels. I only eat tic-tacs in multiples equaling prime numbers.
I love people in my life so deeply that when I really think about it I can see colors and my leg muscles cramp up.
When life becomes stressful the urge to shut down is distant but compelling.
When I look back at my childhood, external environment not withstanding I know that I was different and things were hard for me but I cannot say for a certainty that things were any more difficult for me than any other regular kid - the rules were just different. There are rare and exquisite things about being off center. My specialties were and are considered my super powers even though I was the only one who knew what I could really do. Additionally when you are labeled as broken there are zero expectations of you socially and that is a beautiful thing in many ways. If you aren't required to act like everyone else because you "ain't right" that frees you to experience and perform amazing feats that are blocked for regular folks because they have invisible shackles on them. One of my fourth grade teachers had me by the arm at the High Museum explaining to a security guard about me after I had tripped the alarm from leaning in to smell a Van Gogh.
The humiliation was an acceptable payment since I now knew what the Van Gogh smelled like and nobody else did.
To the people reading this, I am not trying to engender sympathy because I don't really think I need any.
Also I am not trying to be all Mary fucking sunshine about people who are dealing with these kinds of issues nor am I implying that it is harder to be a kid with problems than it is for the mother because I honestly don't think it is. I guess I want to say that I am now so appreciative finally of who I turned out to be that I would not give up the abuses at the hands of kids or the discomfort that I caused adults for a single second if I thought it would change me substantially.
My mother likely thinks otherwise.
Hang in there everybody.
I do not have any children and cannot imagine the myriad of emotional trauma of having a child with these problems causes.
To all of those people on my list, I have remained silent not because I do not care but am at a loss as how to comfort you at all since I have no experience with children and would not be able to offer anything that would not sound arch or false.
One thing I thought I could do, however clumsy an effort is explain what it is to be a kid like that because I was one.
I had been labeled with lots of things. They did not yet know about ADD or else I am certain that would have been the first pronouncement. Some said I was autistic, emotionally disturbed, a sociopath, and one said she was 100% certain I was mentally retarded and needed to be removed from the public school system. She said this to my mother this in front of me assuming I did not have the capacity to understand what she meant.
I found out recently from one of my sisters that as an infant I had not spoken at all by the time that supposed to be happening. People were mildly concerned about it until one afternoon I rattled off an entire television commercial for "Cascade" from start to finish including the jingle.
I had to smell and touch EVERYTHING. This one is still with me although I try not to do it front of other people.
As I developed cognitive abilities I had my own world in my head because the real world brought terrors and discomforts that were hard to articulate.
I couldn't stand the newspaper, I loved blank paper because I was in control of what went on that but paper so large with a language all over it was threatening to me and I would cry in horror as my father rattled it loudly on Sunday mornings. My mothers love for thick shag carpeting caused me no end of consternation. When I stepped on it, it would curl around my feet causing me not to be able to see my toes. I interpreted this as literally disappearing and so refused to walk on it. I would get around this by begging people to carry me around the house or lining the floors with safe objects: clothes, books, paper, toys became ultra important paths of safety. Being left alone on a twin bed every night in a room with shag carpeting was tantamount to leaving me on a dinghy in the middle of the ocean.
My mother constantly washed her hands and then did not dry them all of the way. They felt cold and dead like meat and I did not want them touching me so I would run from her anytime I saw her coming from the sink.
I did not like large spaces, I was not safe there. So I spent a lot of time in boxes, cabinets and closets. I would bring flashlights with me and whatever I planned to do, read or draw or plan. A small enclosed space was the only place I could really breathe. I remember my mother discussing some news item about jailed parents who had locked their children in the closet. Her anger seemed strange to me since at the time, that seemed the safest place to keep one's children in my mind.
School was a major pain in my balls. The structure was confining and a lot of things that teachers did made no logical sense to me. I would respond in kind with things that made no sense to them. Sometimes I would perform experiments that I felt were crucial to me understanding how the world worked instead of the regular curriculum; like emptying the paper hole punch into the air conditioner to see if it would emulate snow when the box would switch on at exactly 2:15.
During a third grade recess I sat still like a stone on the edge of the black top even though it was ghastly hot and I felt like I was baking just sitting there. Eventually the group of brown finches I had my eye on hopped out of the bushes and bounced around me like I was invisible, just inches away. One hopped onto the tip of my red Keds peeping and pecking at my shoelace. The other kids had taken notice since I was entirely surrounded by birds and they all ran over causing the birds to scatter. When I refused to respond to questions about how I had managed to get the birds to come to me Chris Johnson kicked pebbles at me and called me a "witch."
My long years have now taught me that in response I should have leapt to my feet, confirmed his accusation and with pointing finger claimed I was now going to chant an incantation that would cause his pecker to fall clean off.
Thus began my long and winding road of getting transferred from one school to another.
My worst problem was noise. I was ultra sensitive to loud noises but especially white noise. It is still difficult for me to put into words how certain noise would send me scrambling for safety. I would try and explain to people as the noise made by a single object repeated many thousands of times, as if I could hear every instance of it. I would clap my hands over my ears and yell that I could hear all of the blades of grass growing at the same time or all the bees all over the world buzzing at once. This led to most adults rightfully labeling me as "creepy."
When things became too overwhelming I would simply shut down which would result in me refusing to respond to touch or verbal commands. I would sit with eyes transfixed forward concentrating on a single spot refusing to speak or move or blink until they would either ignore me move me frozen in my desk while the legs scraped loud against the linoleum. They would often push me all the way into the hallway like a piece of petrified wood.
I am now past most of the strange obstacles that I had to live with during my single digits. I admittedly have some residuals that will never leave and some newly manifested quirks. There are some things that I experienced as a child that I still cannot explain, some of them are terrifying and some are majestic and some are both.
I can still hear conversations in white noise if I pay attention. I still can't stand very high frequencies to the point of occasionally carrying around a small can of WD-40 with me in case I come across squeaky wheels. I only eat tic-tacs in multiples equaling prime numbers.
I love people in my life so deeply that when I really think about it I can see colors and my leg muscles cramp up.
When life becomes stressful the urge to shut down is distant but compelling.
When I look back at my childhood, external environment not withstanding I know that I was different and things were hard for me but I cannot say for a certainty that things were any more difficult for me than any other regular kid - the rules were just different. There are rare and exquisite things about being off center. My specialties were and are considered my super powers even though I was the only one who knew what I could really do. Additionally when you are labeled as broken there are zero expectations of you socially and that is a beautiful thing in many ways. If you aren't required to act like everyone else because you "ain't right" that frees you to experience and perform amazing feats that are blocked for regular folks because they have invisible shackles on them. One of my fourth grade teachers had me by the arm at the High Museum explaining to a security guard about me after I had tripped the alarm from leaning in to smell a Van Gogh.
The humiliation was an acceptable payment since I now knew what the Van Gogh smelled like and nobody else did.
To the people reading this, I am not trying to engender sympathy because I don't really think I need any.
Also I am not trying to be all Mary fucking sunshine about people who are dealing with these kinds of issues nor am I implying that it is harder to be a kid with problems than it is for the mother because I honestly don't think it is. I guess I want to say that I am now so appreciative finally of who I turned out to be that I would not give up the abuses at the hands of kids or the discomfort that I caused adults for a single second if I thought it would change me substantially.
My mother likely thinks otherwise.
Hang in there everybody.
no subject
Date: 2007-10-26 03:26 pm (UTC)no subject
Date: 2007-10-26 04:42 pm (UTC)Thank you for directing me to it.
no subject
Date: 2007-10-26 03:35 pm (UTC)Amelia's hyperresponsive to sound and texture. We've learned to moderate sound coming in, and an errant loud noise can lose her for an hour.
This is excellent insight for me. Thank you.
no subject
Date: 2007-10-26 04:54 pm (UTC)I am glad and sometime I would like to hang out with Amelia. I bet she is a really cool person, since you are as well.
(no subject)
From:no subject
Date: 2007-10-26 03:37 pm (UTC)I liked this post a lot.
no subject
Date: 2007-10-26 04:55 pm (UTC)Thank you.
no subject
Date: 2007-10-26 04:20 pm (UTC)It just struck me, because he started out in a box, terrified of the sun, and could taste colors, for instance.)
I'm sure the adults in your life were stymied by you, but you relate your experience in such a rich manner. I (gently) envy you the birds and the Van Gogh - he has become a favorite of mine since I was privileged enough to see one of his paintings. The three-dimensional canvas was so vivid; prints will never do him justice.
I've self-diagnosed as a highly sensitive person; certain lights, sensations and sounds make me feel as though I'm going insane. I have a bit of the same reaction to white noise, as well, although it's usually just a bit unnerving. Every winter when our heater comes on, I hear two voices in a singing conversation. *'.'*
no subject
Date: 2007-10-26 05:41 pm (UTC)no subject
Date: 2007-10-26 04:23 pm (UTC)It's good to have the same child-rearing values.
no subject
Date: 2007-10-26 05:42 pm (UTC)we will see, I may accidentally end up with a prom queen.
no subject
Date: 2007-10-26 04:30 pm (UTC)no subject
Date: 2007-10-26 05:51 pm (UTC)no subject
Date: 2007-10-26 04:46 pm (UTC)She's older now, in her teen-age years, and she's quickly becoming one of the coolest kids I'm proud to know. At age thirteen, whenever my girlfriend and I have watched her for the weekend so her single mother could take a trip by herself, she always makes our guest bed when many of our adult friends don't.
My brother, also, was similar in his ways to you. He's now a sergeant in the army, has been through a tour in Iraq and Afghanistan, and served with distinction in both, earning the respect of the men beneath him and many of his superior officers.
no subject
Date: 2007-10-26 06:31 pm (UTC)(no subject)
From:(no subject)
From:(no subject)
From:no subject
Date: 2007-10-26 04:53 pm (UTC)For whatever it's worth, I also know what a Van Gogh smells like. Although i didn't get pinched for it.
A few other observations:
or lining the floors with safe objects: clothes, books, paper, toys became ultra important paths of safety. Being left alone on a twin bed every night in a room with shag carpeting was tantamount to leaving me on a dinghy in the middle of the ocean.
I dunno if it's the same thought processes, but I think I now understand this aspect of my eldest son's behaviour. Thanks for that.
guess I want to say that I am now so appreciative finally of who I turned out to be that I would not give up the abuses at the hands of kids or the discomfort that I caused adults for a single second if I thought it would change me substantially.
I am glad that you are finally appreciative of it. So many of us have been appreciative of you for so long...it's nice to see that you're there mostly there with with us.
no subject
Date: 2007-10-26 06:38 pm (UTC)Hey I will be traveling next week but I would like to get together upon my return from S.Carolina if that is cool with you.
(no subject)
From:(no subject)
From:(no subject)
From:no subject
Date: 2007-10-26 05:09 pm (UTC)no subject
Date: 2007-10-26 06:43 pm (UTC)I love love love that man.
My husband's guitarist is named Lee and she is cool and a big fan of David S.
She and her girlfriend and a guy friend of thiers had arranged for them to stay in a local apartment instead of a hotel.
In a complete coincidence it turns out it was David Sedaris's apartment. She totally trumped my silly letter from him. She said the best part was all these weird medical antiques has has around the place. Plus she got to go down and fetch his mail everyday.
I meant "hijinks" up there, by the way. Duh.
From:Re: I meant "hijinks" up there, by the way. Duh.
From:no subject
Date: 2007-10-26 05:39 pm (UTC)no subject
Date: 2007-10-26 05:11 pm (UTC)I think you're beautiful. I think your mind is amazing and I wish we could find Chris Johnson and yell incantations at him, it would be quite a pleasure.
The very best part is, you alone know what Van Gogh smells like. That's so incredibly awesome I can't even put it into words.
I enjoy you so much. I would not change you for the world.
no subject
Date: 2007-10-26 07:14 pm (UTC)I am not sure what to do with it all of the time, but I am glad it is happening.
no subject
Date: 2007-10-26 05:28 pm (UTC)I miss you. I reeeally miss you. :)
*sends you 127 tic-tacs*
no subject
Date: 2007-10-26 07:15 pm (UTC)Thanks.
(no subject)
From:(no subject)
From:(no subject)
From:no subject
Date: 2007-10-26 05:55 pm (UTC)This is rambling. What I really want to say is thank you for reminding me what goes through a child's mind, especially extremely intelligent/perceptive children who take in so much its sometimes hard to sort it out or explain to the rest of the world what is being perceived.
no subject
Date: 2007-10-26 07:21 pm (UTC)no subject
Date: 2007-10-26 08:28 pm (UTC)I'm glad that you're able to see those things that made you different as "super powers" now. They absolutely are.
I treasure my ability to see phone numbers and music as colors. I wouldn't trade away a day of playing make believe on the playground with cracks in the pavement and tree stumps. I still color code the clothing in my closet when I'm feeling anxious. The things that soothed me in elementary school still soothe me now. I succeed because I don't play by the same rules. There's always a work around.
no subject
Date: 2007-10-26 10:43 pm (UTC)You have synesthesia too?!
I didnt even know there was a word for it until a couple of years ago. Letters of the alphabet have numeric values for me so that certain words combined with other words create larger numbers or equations. Certain letters corresponding numbers are wildcards and are mutable depending on the numbers preceeding them.
There IS always a work around.
(no subject)
From:(no subject)
From:(no subject)
From:(no subject)
From:no subject
Date: 2007-10-26 08:40 pm (UTC)Our experience with this type of thing has left me sitting in a weird position. After being told by countless "experts" that she was almost certainly autistic, getting the daughter in the right environment (which was a gut decision against the advice of said experts mind you) made such a drastic difference, it was like magic. What many pointed to as concerning quirks are now strengths which drive her curiosity, imagination and ability to learn. The delays everyone freaked us out about were overcome and she is now a leader in her class teaching the younger kids who all seem to be in awe of her. What was once concerning, odd social behavior is now a keen knack for seeing the truth of a awkward or typically hurtful social situation for what it is and dealing with those facts accordingly better than most adults do.
Overall, I think the medical and educational world (if not society in general) is far too fond of classification and pigeonholes a lot of kids before they are given the change to overcome their obstacles in their own ways. I'm certainly not advocating ignorance of these conditions, in fact, just the opposite. Parents should arm themselves with all the knowledge they can, but take it all with a grain of salt and a lot of faith that nothing is for certain and kids are amazing. There are obviously the severe cases, but most kids find their way if you let them. Childhood difficulties do make for stronger adults. They just need to be given enough slack to deal with it.
I had the noise thing as a kid as well by the way. Heard voices in crickets and stuff like that. And being a very paranoid/timid kid anyway, that was terribly frightening and made sleep difficult up to my early teens. I remember a kid having one of those loud spark guns and literally sending me into a panic because I thought I was hearing hundreds of screaming women (er... um... in pain that is). The reason I became obsessive about music was that it drown out the chaotic patterns in noise. Ironically, now I listen to noise to get away from insane loops of music in my head. :)
no subject
Date: 2007-10-26 10:51 pm (UTC)I am SO glad to hear that your little girl is doing well and she has found a spot that is perfect for her.
no subject
Date: 2007-10-26 09:11 pm (UTC)no subject
Date: 2007-10-26 10:37 pm (UTC)It seemed insulting when it was completely opposite of my intention. It was closer to my meaning that people who do not have such disorders tend to have social parameters already built in, almost autonomic. Where as myself, I have to have these little rules at the forefront of my brain like little post it notes to remind me that I cannot call talk to a perfect stranger in a grocery store about how fascinating intestines are or the structural difficulties in building a house shaped like an elephant.
Often enough I forget. :)
(no subject)
From:no subject
Date: 2007-10-26 10:41 pm (UTC)I think people need to pay careful attention to children. It's too bad that so few people pay careful attention. I think children try to tell us (somewhat) how to raise them.
I really enjoy your writing.
no subject
Date: 2007-10-26 11:01 pm (UTC)I guess if I ever reproduce we will see if the mother's curse applies.
no subject
Date: 2007-10-26 11:29 pm (UTC)no subject
Date: 2007-10-27 03:40 am (UTC)As far as your bad day goes - it is over now and you get to start over tomorrow fresh. You have a great weekend!
no subject
Date: 2007-10-26 11:32 pm (UTC)no subject
Date: 2007-10-27 03:49 am (UTC)and thanks especially for the free advertising. It is the gift that keeps on giving. :)
no subject
Date: 2007-10-26 11:38 pm (UTC)I really love you, you know.
Also b=4.
no subject
Date: 2007-10-27 03:57 am (UTC)Yeah oddly enough it does equal 4.
:)
Another Identifier
Date: 2007-10-27 12:02 am (UTC)I know what a VanGogh smells like too :)
Re: Another Identifier
Date: 2007-10-27 04:00 am (UTC)what did it smell like to you?
no subject
Date: 2007-11-16 10:52 am (UTC)I was a highly sensitive child, but introverted enough that many of the more obvious behavioral and personality quirks were "socially stigmatized" out of me. Even as an adult, I find myself torn between wishing not to draw attention to some of my unique reactions to the world and holding them tight and appreciating them and being rather defiant and defensive about them.
I can relate to the relationship you had with wild creatures. I spent a lot of time playing in the woods around my house and often was able to interact with wild creatures who apparently eventually realized I meant them no harm.
Some thoughts I have come to suspect are true:
Ignorance is indeed a type of bliss. But is the bliss worth it?
People who think a lot and deeply about things tend to have more trouble with relationships than people who are predominately feelers. That's a Myers-Briggs dichotomy: T versus F habituation. Conversely, when Ts do find themselves in a good relationship, they give it their all.
Because high sensitivity and introversion and thinking deeply about things are typically behaviors that thrive in solitude, they are discouraged by American society in a whole, which rewards extroversion and "getting in touch with your feelings" and "letting it all out," and popularity with peers.
If you manage not to have your sensitivity and thoughtfulness socialized or guilted or beaten out of your in childhood, those qualities can contribute to being an interesting adult.
"Not fitting in" can be character-building.
I wish I were feeling more articulate right now, but several weeks with minimal sleep and a high level of stress leading up to finals has made me scatterbrained. In short: thanks for sharing your memories.
no subject
Date: 2007-11-16 03:21 pm (UTC)It is like a social corset to me. Often I just prefer to be alone so I can do what feels natural to me instead of trying to remember not to do or say certain things.
Good luck to you and the name "Milla" is an extraordinary one.